At The Bedside of The Sick and Dying

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Photo: Mark Fanders

Father Kaz Chwalek, MIC, blesses Ella with a first-class relic of Blessed Stanislaus Papczynski.

Prayers for Ella

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Ella visited the National Shrine of The Divine Mercy with her mother, Jamie (right), and grandmother, Kathy (left).

The family of a 5-year-old girl with two rare medical disorders is turning to the Marian Congregation's founder, Blessed Stanislaus Papczynski, for help.

Blessed Stanislaus (1631-1701) has proved himself to be a powerful intercessor for sick children. So with that in mind, the family of Ella Grace is praying to him for good health and strength of Ella. She suffers from two gastrointestinal motility disorders that have come to define her young life and the lives of her family in terms of the medical attention Ella needs — though her medical condition has not defined Ella as a person.

In May, Ella visited the National Shrine of The Divine Mercy in Stockbridge, Mass., with her mother, grandmother, and a family friend. The Provincial Superior for the Marians, the Very Rev. Fr. Kaz Chwalek, MIC, said a private Mass for them in the Marians' residence and then prayed over Ella with a relic of Blessed Stanislaus.

"It was a beautiful day," says Ella's mother, Jamie, who has been praying to Blessed Stanislaus upon the recommendation of her mother, Kathy, a longtime Marian Helper. "We're just praying for something that gives Ella a better quality of life. It's been a long road."

Indeed, it's been a road pockmarked by uncertainty, anxiety, hospitals, and physical pain.

A Complex Disorder
In April 2011, Jamie and her husband Nathan of Orchard Park, N.Y., began noticing that Ella's stomach was becoming extremely distended and hard. She was unable to produce a bowel movement and began to refuse food. She also complained her "tummy hurt her, and she was fatigued.

After many tests by medical experts in Buffalo, N.Y., Rochester, N.Y, and Boston, Mass., Ella was finally diagnosed with two gastrointestinal motility disorders called "gastoparesis" and "colonic neuropathy pseudo obstruction." Simply put: Ella's entire colon is unable to function and doesn't contract. Three quarters of her colon is also swollen with gas.

She is one of 200 children in the United States diagnosed yearly with this neuropathy pseudo obstruction. Also, her stomach nerves do not produce strong contractions, therefore delaying stomach emptying. Various medications and surgeries have done little to help.

She has an external cecostomy tube through which her parents are able to flush her gastrointestinal tract using saline. Other medications are also administered. She also has been on a medication that has helped relieve some of the symptoms for gastroparesis. Unfortunately, as of last week, the government no longer allows the drug to be imported. Approval of the drug is pending review by the Food and Drug Administration. No medication has helped her gastrointestinal tract. Ella is undergoing more testing this month in hopes of a solution for her disorders.

Ella's family requests that people petition their local representative to cosponsor a bill called HR 842 (Functional Gastrointestinal and Motility Research Enhancement Act) that would bolster federal research into functional gastrointestinal and motility disorders and that would call on the Food and Drug Administration to improve review, approval, and oversight of treatments for such disorders.This bill would also allow more funding for research.

For more information on the bill and how to contact your local representative click here.

A Happy Child
Despite all the pain and struggles, Ella remains "a giving and loving child who is very strong," Jamie says. "She does whatever she needs to do because she wants her tummy to be better. This poor little girl has suffered a lot, yet she doesn't let anyone know."

Indeed, Ella, a soon-to-be kindergartener, puts her focus on helping others, including a girl in her town who suffers from eosinophilic esophagitis, a rare allergic inflammatory disease of the esophagus. Ella hopes to raise money for research of that disease.

"Ella cares so much about others," says Jamie. "She wants to make others happy. She says a prayer whenever a friend is sick. She prays for other people and wants to make other people better. She colors pictures for people in nursing homes. When you look at her, your heart melts."

Meanwhile, Ella's family now are also concerned that their youngest of three children, 22-month-old Joshua, may be showing signs of a similar disorder to Ella's.

The Power of Prayer
So what does the Marians' Founder, Blessed Stanislaus, have to do with all this? First of all, Ella's family believes in the power of prayer.

"Prayer is what has gotten us through," says Jamie. "Now with Joshua, our prayers are 'times two.' We don't ask why God is doing this. These struggles are meant for us at this time, and we deal with it."

Ella's family believes that only through prayer will the right doctors, the right procedures, and the right timing of appointments open up to them.

Why Blessed Stanislaus?
As for Blessed Stanislaus, he has proven to be a powerful intercessor for thousands of people around the world who have called upon him in prayer.

He was beatified in 2007 following a miracle attributed to his intercession that involved a Polish boy whose heart had stopped beating while in his mother's womb. The doctor had declared the boy dead. The following day, a second test confirmed that the fetus had no heartbeat. Meanwhile, a family member had been praying a novena to Stanislaus, and his prayers were answered when, on April 4, 2001 — on the eighth day of his novena — the fetus regained a heartbeat. The child was born without complications on Oct. 17, 2001.

The miracle cleared the 300-year-long path to the beatification of Blessed Stanislaus.

Moreover, Blessed Stanislaus himself suffered from severe illness as a child, but was healed, he believed, through the intercession of the Blessed Mother.

"Over the years, we have received many, many reports of graces received through the intercession of Blessed Stanislaus," says Fr. Kaz. "We know we can turn to him in prayer."

With that said, we ask that you pray for Ella's family. We recommend the following prayer for a special grace through the intercession of 
Blessed Stanislaus Papczyński:

God, our Father, Who in Your unfathomable Providence gave us in Blessed Father Stanislaus a successful intercessor before Your throne, grant me through his intercession the grace of good health and strength for Ella, Joshua, and their entire family, for which I beg You. Also grant that in accord with his example I may faithfully fulfill Your most holy will. Through Christ our Lord. Amen.

Then pray an Our Father, a Hail Mary, and a 
Glory Be.

We also invite you to pray a novena for the intention of receiving graces
through the intercession of Blessed Stanislaus. Here's how.

Jesus, we trust in You!

Please visit the following websites for further information about Ella's disorders:


Also, visit Ella's Facebook page for updates.

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Be a part of the discussion. Add a comment now!

AMF - Jun 4, 2013

I'm in!

joseph m. johnston - Jun 4, 2013

tues nite 11:07 prayers said for ella. Thy Will Be Done thank you lord

A - Jun 5, 2013

Praying for Ella and her family! Blessed Stanislaus is truly a powerful intercessor!

Debbie in orchard park - Jun 8, 2013

May our Lord continue to Bless Ella, Joshua, and their entire family..He is listening to all our prayers..and will never forsake those in need..Let us all keep the faith that his will works wonders even in the face of pain..

Farah - Jun 11, 2013

I know how Ella and her family feel.
We've lived with a sick child, through the difficulties sensed God''s love and mercy.
Right now we are praying for a 20y old lady who's suffering of motility disorder following food poisoning .
We will keep Ella and all kids suffering from this disorder on our prayers.
Jesus we trust in You

Pat - Jun 12, 2013

Has this family heard of the book "healing of Families" by Fr. Joseph? I think they should do the prayers as outlined in his book. Can't hurt and could do wonders. I'm praying for Ella and Joshua and all children similarly afflicted too.

Dee - Jun 12, 2013

Praying with and for this precious family!
Jesus we Trust in You!

pat d - Jun 12, 2013

ella will be in daily Mass and communion plus rosary

Jane from Greenlawn - Jun 12, 2013

I'm praying for you honey and for mom and dad too!! Love your friend, Jane xo

Genny - India - Jun 13, 2013

Love you Ella & Joshua. Jesus & Mother Mary loves you both. My prayers are with you & your family. You are healed by the precious Blood od of Jesus. IIn Jesus name we pray. Smile always and trust in the Lord Jesus and Mama Mary for they never fail. Jesus loves children very much.

praying St. Jude novena - Mar 10, 2015

Hi, I happened to already be praying a St. Jude novena (from EWTN) for sick children, so now I'll also include praying for her specifically.

It sounds like the condition is more serious than mere constipation, and yet hopefully nutritional efforts can help a little bit? Things to consider may include: dehydration, lactose intolerance, fiber or iron or calcium (or other vitamins) deficiency or excess, diabetes or sugar levels problems, food allergies or medicine reactions, waiting too long to go potty, stool softeners, foot massage therapy, getting enough rest/exercise, etc.

Those are basic physical things to discover if treatment will alleviate them, but of course prayer has to be number one. Our health is from God, without Him we wouldn't exist & our life is only sustained by His omnipotent loving care. I don't know if St. Jude's Children's Research Hospital could assist the family, but I for one will pray the St. Jude novena especially for her physical/ emotional/ psychological/ spiritual well-being. I hope she'll feel better as soon as possible, according to God's loving Will. Of course suffering is redemptive, but Jesus is also known as the Divine Physician, and He cares tremendously about healing people, especially poor little kids.

Keep us updated on her progress or need for more prayers!

St. Jude prayer warrior

Prayer 4 Children in Divine Mercy Novena - Mar 10, 2015

"Sixth Day
Today bring to Me the Meek and Humble Souls and the Souls of Little Children,

and immerse them in My mercy. These souls most closely resemble My Heart. They strengthened Me during My bitter agony. I saw them as earthly Angels, who will keep vigil at My altars. I pour out upon them whole torrents of grace. I favor humble souls with My confidence.

Most Merciful Jesus, You yourself have said, "Learn from Me for I am meek and humble of heart." Receive into the abode of Your Most Compassionate Heart all meek and humble souls and the souls of little children. These souls send all heaven into ecstasy and they are the heavenly Father's favorites. They are a sweet-smelling bouquet before the throne of God; God Himself takes delight in their fragrance. These souls have a permanent abode in Your Most Compassionate Heart, O Jesus, and they unceasingly sing out a hymn of love and mercy.

Eternal Father, turn Your merciful gaze upon meek souls, upon humble souls, and upon little children who are enfolded in the abode which is the Most Compassionate Heart of Jesus. These souls bear the closest resemblance to Your Son. Their fragrance rises from the earth and reaches Your very throne. Father of mercy and of all goodness, I beg You by the love You bear these souls and by the delight You take in them: Bless the whole world, that all souls together may sing out the praises of Your mercy for endless ages. Amen."